and Now?

And today?
Yes, what is actually today?

I can say for myself that it was the right decision to reject the transplant.


The doctors gave time to live six months to me.
Today, in December, 2013, there are almost 5 years!

After the rejection of the transplant, I ended up for 6 months on a list - Not to be transplanted-

In the following months, my health had stabilized further.
I was instructed from then on, although 24 hours on oxygen and got a wheelchair for traveling, but hey - you get used to everything.

In November 2009, I was then adjusted to the drug imatinib (Gleevec) at his own request. I did tell my doctor: If you do not try you can not even know that it does not help.

In the following months, my values ​​stabilized further and I felt much better. It was important to not increase the pressure again.

Since my sister had promised me that I should be at the birth of my niece while (because I can never get myself child)
Was 23 May 2010, the best day of my life so far.
Because in order 16.24Uhr saw my little angel Lena the light of day.

In the summer of 2010, we made ​​for the first time in five years a really great holiday. We rented an RV and then made ​​our way south. Overall, we placed about 6000 Km in three weeks back.
It went from Germany via Italy to Monaco to a campsite near Tarragona, Spain.

We stayed there for two weeks until then across Spain, past Pamplona, to France, to Cap Ferret, went. It went over the Switzerland then to Dresden and from there back home.

This holiday was the absolute highlight of this year, of course, every day with my angels is a highlight for me.

Leni is my everything.
If I'm in a bad mood once I need it just to see and I feel better immediately.

Since I am now retired early I started writing stories.
I started with FanFiktions to Harry Potter and the bite books.
Currently I am writing my own novel. If all goes well it will be a three-parter.

Health everything has remained the same stable.
However, the issue of transplantation is still on the table.
With the Gleevec I still only get some air upwards.
My values ​​should deteriorate again, the transplant is again high on the agenda. And then I will not refuse again,
You get this chance namely not infinitely often.



 
Now you have a glimpse into the past five years of my life now. If anyone has other questions, let me a comment there ;)